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The CRPS Community

Promoting Awareness of Complex Regional Pain Syndrome

Welcome to the UK's first and best community website dedicated to Complex Regional Pain Syndrome or to those that are sufferers or involved in the illness referred to simply as CPRS. Please browse the website, you can find a variety of information including research and regular information from the UK's leading CRPS expert Professor Karen Rodham and the outstanding Olympic Archer Danielle Brown.

We also offer downloadable documents that will help you cope with your illness and where practicable relevant information on benefits, disability discrimination in employment and info on day to day life.

Of course we also offer a free to use popular members only forum, which we advise you to join, its a great place to meet new people, share stories and get advice.

Learning to Cope With CRPS / RSD

"Prof Karen Rodham draws on a wealth of clinical experience to give tried-and-tested practical advice for managing this very complex and debilitating syndrome, about which very little is understood by the medical community at large."

Professor Rodham's book is available from Amazon.co.uk and Amazon.com get in touch through her website.

Complex regional pain syndrome (CRPS), formerly Begum Syndrome, is a chronic progressive disease characterized by severe pain, swelling and changes in the skin.

It often affects an arm or a leg and may spread to another part of the body and is associated with dysregulation of the autonomic nervous system resulting in multiple functional loss, impairment and disability.

Though treatment is often unsatisfactory, early multimodal therapy can cause dramatic improvement or remission of the syndrome in some patients. The International Association for the Study of Pain has proposed dividing CRPS into two types based on the presence of nerve lesion following the injury.

  • Type I - Formerly known as reflex sympathetic dystrophy (RSD), Sudeck's atrophy, reflex neurovascular dystrophy (RND) or algoneurodystrophy, does not have demonstrable nerve lesions.
  • Type II - Formerly known as causalgia, has evidence of obvious nerve damage.

The cause of this syndrome is currently unknown. Precipitating factors include injury and surgery, although there are documented cases that have no demonstrable injury to the original site.

Join the Community

Join us to ask questions, talk to others with CRPS and have your say on a wide range of topics.

Coping with CRPS

Ten first-hand patient accounts of living with CRPS illustrate just how wide-ranging the impact can be physically, socially and emotionally, and what has helped on an individual basis.

CRPS Wristbands

Help us to promote awareness of Complex Regional Pain Syndrome by purchasing an exclusive crps wristband. Chose between - "I am a CRPS Supporter" and "I am a CRPS Sufferer"

CRPS Centres

Looking for a specialist treatment centre in your local area? View our specially compiled list of the countries top hospitals that have a reputation for providing effective treatment programs.